Cake, Kidneys, and Cancer

pediactric cancer story

To try and summarize Jed’s first year of life would exhaust a much more proficient writer than I. Any year that begins with “not expected to survive” and ends with stage three liver cancer is bound to be a tad incredible. This boy doesn’t believe in mediocrity, I’ll give him that much! I’ve been wracking my brain to think how to do justice to the time that began with me writing this letter to Jed before he was born, to where we stand now. And I totally give up. There is just no good way to explain how thousands of rides up the elevator to the eighth floor of a children’s hospital will profoundly change a person. Or how a little boy with impossibly fat cheeks who yells and grins and breaks every medical rule in the book can melt his way into hundreds of hearts. How a year ago, … Continue reading

Lessons on gratitude from a preemie

Lessons on Gratitude from a Preemie

Today my mini girl turns seven months old. I can hardly believe it’s been over a half a year since I first met her tiny little self. In a few weeks she will be coming home. Home!! As in, I can see her anytime I want, home! As in, this really is my kid to keep, home! As in, yes your sister does exist, home! After seven months of daily hospital trips…seven months of starting every day with a phone call to the hospital to see how she did last night…seven months of praying with the big girls for baby sister to “feel better”…seven months of life revolving around the happenings in the tall building on East Cheves Street…it all will change to a whole new normal that is on the one hand excessively exciting, and on the other, completely terrifying. Terrifying because I’m the mom who can barely stomach … Continue reading