System Recalculating….

He’s home. My rolly polly six month old little guy with kidney failure and the really, really, loud set of lungs is home. This one. The one that should never have survived. I still can’t quite believe it. How did I get so blessed?

Special needs parenting

Honestly though, I’m not really sure what day it is, and I’ve had at least fourteen cups of coffee already so here’s my random thoughts on the new, completely crazy, sorta fun, sorta terrifying new normal we’ve got going on around here.

  • First you need to know that having two tubies around is insane. They’re beeping, trying to pull out tubes, throwing up, setting off alarms, you name it, all at the same time. Except for night time, then they take turns…because parents should not, under any circumstance, be allowed a full nights sleep. Real cute aren’t they.
  • If you have multiple children, you know that after the first one you relax a bit, and then after the second, you could care less if the third one is eating moldy gold fish from under couch cushions. It’s kind of like that with medically fragile kids too. Oh hey that thing’s been beeping for twenty minutes but it’s all good because I heard a cough so that means they’re still alive. Don’t worry kids, you are totally safe with us.
  • I need an answering program on my phone…please press one if you’re calling about Jed, please press two if you’re calling about Christina, please press three if you are actually someone I know and want to talk to.
  • Having a child on life support and another on dialysis gives me a really, really damaged perspective on problems. Anything less than a life threatening experience is not a problem, it’s just an inconvenience. Suck it up, and deal with it darling. My older two children really appreciate my warm sense of compassion.
  • My new motto for myself is “finish one thing at a time.” Catchy huh. See, when your starting a load of laundry with a syringe of anti-seizure medicine in one hand while yelling for someone to please come get their socks off the table and you notice the sandwich you were eating for lunch yesterday is sitting in a random window sill but you don’t remember putting it there….well, let’s just say a girl’s got to lay down some rules for health and safety. Know what I’m saying?
  • My greatest take away lesson from the crazy, scary, exciting year of 2015 is that even when God is not good, He is so, so good. God knows the hard, and the confusing, and the overwhelming is going to happen long before it does, and He is ready for it. He has the people who will encourage, the solution to the problem, the thing that meets the need, He has it all in specific, perfectly timed, exactly right detail. The God of the Christmas story is the same God who rules today. Last year’s faithful God is next year’s as well. I can’t think of a thing that settles a heart and brings more peace than that, can you?

special needs parenting

 Luke 2:13-14  And suddenly there was with the angel a multitude of the heavenly host praising God, and saying, Glory to God in the highest, and on earth peace, good will toward men. 

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About Abby

I'm a mom, blogger, and shop owner. I love all things creative, especially sewing! Follow along at www.chapterthirtyseven.com
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4 Responses to System Recalculating….

  1. Michele says:

    Merry Christmas to you and your family. Sending good thoughts and prayers your way.

  2. Meredith says:

    Merry Christmas! I found your blog through pinterest- the post about the kitchen remodel is one of my favorites- and I’ve been keeping up with the tubies.
    I was 2.5mos premature myself (and this was back in 1991) and I don’t know how I avoided the medical issues your kids are going through right now. They’re certainly some tough cookies! I love seeing their updates and hearing about how the family is doing. Best of luck with the new year!
    Also, your boy looks like droopy dog with those cheeks. I just want to kiss them. :)

  3. Clare says:

    Can I just say, “thank you” for blogging? I’ve caught up on your last year and half tonight, and I have no words. So many prayers, though, for you and your family. I hope that the Lord continues to amaze you. Your faith is inspirational, because it is true faith, and the way you share it is so lovely.

  4. You are a beautiful person, Abby. Praise be to God for Jed coming home! You used to link up to my link party and I was sitting here wondering what you were up to when I stumbled across an old feature of your foyer. Wow, I’m so sorry I had lost touch with your blog. I’ve been reading and crying for over a half hour now. Praying for your family – what an encouragement you are and your sense of humor is just awesome. I’m not a hugger, but I’ve got a big one with your name on it. And all of your precious children!

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