Perspective is Everything

Day 49, first time I get to hold Jed since the day he was born.

I almost always avoid the topic of my two tubie kids in passing conversations if I can possibly help it. (Official definition of a tubie: kids with feeding tubes. In this blog this term shall herafter refer to kids with feeding tubes, trachs, ET tubes, IVs, dialysis catheters, or any other type of tube that I don’t know about yet.) Sometimes the topic just comes up naturally. Sometimes it’s purely out of my control, like when someone (usually a cashier or some such person) makes the innocent mistake of calling my four year old the baby sister. Which typically then results in an indignant five minute monologue from the offended little lady of just why she is not the baby sister. That usually leaves me to sputter a hasty explanation to the now embarrassed individual, or just smile blandly as I make my exit and leave them to wonder whatever they like. … Continue reading

Happy Sweet 16 (days that is), and 16 random thoughts to celebrate

Happy Sweet 16 (days) to Jed

Baby Jed is 16 days old. After all the lead up, all the doctors appointments, all the trepidation, I can’t say I wasn’t relieved to finally see his little face in person. And here we are on day sixteen for my little man who was never supposed to make it this far.  The day that Jed was born went as wrong as wrong could get. We had a plan. All the “ologists” had talked. We had a date. I knew where I was supposed to be, and who was supposed to be there, and what what supposed to happen. Except that crazy kid did his own thing and came at the wrong time in the wrong hospital in the wrong way without the right people having time to know he was coming. And oddly? It all worked out just about perfect. Which is exactly how you know God was looking … Continue reading

A new chapter: The mini comes home

trach baby in home set up

It’s been two months since “the mini” came home. The day she came home was one of the best and scariest days of my life. Two whole months home! It feels like such an accomplishment, which is a weird thing (and probably socially unacceptable) to say about your baby coming home from the hospital, but it’s true. You would think that by the time a third kid comes along you would have this parenting thing down to a science. You would think. Unless of course the third kid is a one pound micro preemie who completely rocks your world and destroys everything you thought you knew about baby care. Well, not everything I guess, diaper changes and spit up seems to be a pretty universal baby skill. But as for the rest of my hard earned mothering credentials, I can pretty much chuck them out the window. The mini came home with … Continue reading