I barely noticed the line of cars to my right as I swept by, flashers blinking rhythmically, speedometer reading 90 miles an hour. Yes, I was speeding. No, I did not care. How many times had I done this? Peering into the black night. Wishing the miles to go faster. The pounding question.” Will Jed die today? Will I get there in time to say goodbye?” Evil does not play nice. It will squeeze the soul with fear, it will shriek its mocking questions, and it will kill a little boy. Of all the things to hit my mind at such a time, God sent this phrase to my heart from Psalm 23, “I will fear no evil”. It was almost absurd. I wanted to crash through the line of traffic when we screeched to a dead stop on the interstate, I wanted to scream at everyone to get out … Continue reading →
Jedediah “Jed” Lewis Feistel, 2 years old, ran through the gates of Heaven on Sunday, October 8, 2017. (Click the picture link below to see video) (Parent’s tribute to Jed read at his funeral) Abby: It seems a little unfair to me to let you assume that Rich and I were the main players in Jed’s life. Both Jed and Christina have had teams of medical people who not only saved their lives on multiple occasions, but who have poured their hearts into our babies. You are so special to us, thank you. Rich: The first time I saw Jed he had about five sets of hands all over him, you could just catch a glimpse of him every once in a while. The poor little guy was trying so hard to breath. The first few minutes were intense. Jed turned blue as soon as the umbilical cord was cut … Continue reading →
Clink, clank, clunk. One dollar and ten cents earns me a solid two hundred calories worth of almonds at the rest area vending machine on the side of I-95 half way between Jed’s hospital and my home. If I eat them ponderously, one at a time, this enough to keep me awake for the remaining 76 miles to home. Words fail to express the thorough disgust dripping from my stare that reflects back to me in the vending machine glass door as the blue bag of almonds dangle in midair, provokingly refusing to fall. The only thing worse than an uncooperative falling bag of almonds, is the insolence of a machine that plunks the wrong item down into the tray. Dear machine, we had a deal, I put in the money. You give me what I want. You flubbed. Try harder next time. Thanks. My phone dinged, and the text … Continue reading →
There is a certain member of this family, who, for the duration of his almost two year old life, clearly has demonstrated a moral objection to predictability or monotony in any way. He was not expected to survive past birth, and he did. He should not have made it through his first year, and he did. He should not have made it through a recent four month stint home on hospice with liver cancer, and he did. I don’t know what choice one has with such a child except to let him have his own way, and try again to do what we know to do to help his little body become healthy(ish). I am completely grateful for, and deeply admire his tenacity, although I personally feel that he may have used his “youngest of the family rights to be dramatic” a little liberally. Do you suppose it is his … Continue reading →
It was, by far, the longest August day ever recorded, the day our Christina rolled off to the operating room to get her tracheotomy tube and feeding tube placed. I had been dreading it for weeks, the weather was dismal, the plastic vinyl chairs were hard and squeaky, and the surgery more or less took several eternities. Or so it seemed. When the surgery team wheeled her back into her room, there was the usual post procedure hive of activity. People darting here and there, reconnecting monitors, getting vitals, passing off information to each other, someone’s face in front of mine telling me how great the whole show had gone. I’m sure we said the usual appropriate things. My first glimpse over someone’s shoulder of my newly improved child did not leave me feeling charmed. I was in fact, thoroughly and completely horrified to put it bluntly. Of course I … Continue reading →
The baby was up all night. All four kids were sick. One of them in particular is worth at least six kids when she’s sick. I won’t mention any names, but she’s two, has blond hair, and handles feeling badly about as graciously as a cat getting their toenails clipped while being held under water. The car wouldn’t start when it was time for church. The dog chewed up at least ten things over night. New Year’s Day was…ummm. Great. Just really. Great. I did chuckle about it, a lot…because of course! Of course the old nasty Devil is going to come right out of the shoot with all sorts of dirty little tricks to immediately ruin our so called “fresh start”, “new page”, whatever you want to call it. As I sit listening to my little man laboriously breathing like a freight train, the oxygen consentrator humming, and sporting … Continue reading →
Red shirts glittered and hair bows sparkled on bright eyed little girls. Short little men in plaid shirts and bright sweaters wiggled impatiently on the stairs of the church auditorium. The music swelled and one solitary sweet voice sang, “Happy birthday, Jesus, I’m so glad it’s Christmas, all the tinsel and lights, and the presents are nice, but the real gift is You.” The elderly lady sitting next to me reached over and patted my knee. With eyes shining with pride she whispered excitedly, “That’s my great grandson singing!” She didn’t know me, I didn’t know her, but what did that matter? We smiled at each other, and settled back to listen to the childlike voice settling gently over the crowd. I couldn’t help it, but her simple, spontaneous gesture of delight in someone she loved brought a deep pang to my heart. In one brief second I saw myself, … Continue reading →
It’s the month of November which means “thanks” is all the fashion until we move on to more pressing matters of black Friday sales and Christmas wish lists. I was thinking what I wanted to say about thanks the other night while doing an arobic activity we do daily around here called, changing trach ties. My daughter has a trach (tube in her throat to help her breath) and it is held in place by a tight velcro strap around her neck. This strap has to be changed daily and the skin washed to prevent skin break down and infections. Simple enough. Except that she’s two, and two year olds all seem have a basic need be terrifyingly unmanageable at the most inopportune moments. It’s all four of her extremities thrashing wildly against my very logical suggestions that she hold still. Never mind I’m trying to hold a tube in … Continue reading →
The two babies of this house have polar opposite ways of starting off the day. Christina wakes up like a small angry tornado. After about 30 minutes of thrashing around, coughing, yelling, and usually at least one large throw up, she settles down to look at the day like a reasonable human being. It’s safe to say she’s not a morning person. Jed, on the other hand, is more or less delighted to find himself in his bed upon waking up, is thrilled to death to see any human face, and is so full of things to chatter about and smile at that he can barely contain himself. It’s the same morning for both of them. One child is going to endure it with the greatest protest possible while the other is going to enjoy it thoroughly. I have a choice everyday, no matter what is in that day, to … Continue reading →
To try and summarize Jed’s first year of life would exhaust a much more proficient writer than I. Any year that begins with “not expected to survive” and ends with stage three liver cancer is bound to be a tad incredible. This boy doesn’t believe in mediocrity, I’ll give him that much! I’ve been wracking my brain to think how to do justice to the time that began with me writing this letter to Jed before he was born, to where we stand now. And I totally give up. There is just no good way to explain how thousands of rides up the elevator to the eighth floor of a children’s hospital will profoundly change a person. Or how a little boy with impossibly fat cheeks who yells and grins and breaks every medical rule in the book can melt his way into hundreds of hearts. How a year ago, … Continue reading →
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Welcome to chapter37! I'm Abby, the face behind the blog, and I'm so glad you are here! I call myself mom to four beautiful stories being written...two typical girls full of sparkles and giggles, one former preemie winning her battles one at a time, and a little man living life with gusto despite kidney failure and liver cancer. I write about the kids, the house, and all the mess in between. I hold the opinion that anything in life can be handled with God, a paint brush and a healthy sense of humor!